Today is Independence Day in the United States, and it may very well be my favorite Holiday. It has nothing to do with fireworks or cookouts or that I had ancestors fight in the war. I probably had some on both sides. This picture was taken during a short break at the PPMD Conference. Aside…
Read MoreI have Duchenne Muscular Dystrophy, and I’m in my late 30’s. I’ve noticed something about relationships, and I’m sure I am not the first. For me, the way it was is very likely still the way it is for you younger guys. Cute Kid For me up through high school, I was popular with the…
Read MoreEvery year 20,000 parents find out their child has Duchenne muscular dystrophy. It was a known possibility for some families, and others – like my family – are caught completely unaware. Unfortunately, muscular dystrophy families do not have a monopoly on the grief of a child with a disability. In the disability community, far more…
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Hero? I was once asked what I thought about calling individuals with DMD heroes and warriors just because they have a disability. True, it’s challenging to have DMD, but every person on the Earth has a struggle of some sort, and no one understands someone else’s fight. You bemoan your fate, but if you had…
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